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Really Fed up Now
#1
Well, I am still on crutches and a wheelchair when we go out and still, no one seems to knows about the 4 groin injections I had in February, which caused this problem.  My dr actually rang the dept concerned and was told to email the paperwork from her to him and he would get it sorted, well that was the end of July, he has 4 days to end of August and we are still waiting.  Dr asked us to wait until the end of August before we see her again, and then we will have to put in a complaint.   No one wants to own up apparently.

To top that hubby has been diagnosed with Prostate Cancer and sees the Surgeon on 4th Sept, to make arrangement to take it out, he is worried sick about me as I am unable to manage without him, he does everything now as I am unable to stand for more than 4/6 mins without the shooting pain that knocks me out.  

On a brighter note, I still have my sense of humour but am in a lot of pain and it sometimes makes me cry.  BUT I am lucky to wake up in the morning, that's something. 



















 the results are not good, the L4 and L5 have parted company and that is causing the pain that almost makes me feint 
also had knees done, left knee is bone on bone, right knee has only 7 of the little sacks instead of l5 think he called them burses.   Unable to get into bed so slept on the recliner chair for 3 months, now had to purchases recliner beds, which are still difficult to get in and out of, hubby has to assist, but he has now been told he has cancer of the prostate and will be going in hospital within the next few weeks,  he is worried about how I will manage.   They have four days to reply to my dr about the 4 injections no one seems to know about, but me, then we will have to write and complain about it all, all in all we are both worried about different things.
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#2
WOW! You have a lot on your plate! Depending on how old your husband is, his prostate cancer might be treatable with the use of Lupron to suspress testosterone production.
Pia Allen - Edmond, Oklahoma
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#3
My dr still cannot get a reply from the hospital about my groin injections, am really frede up now, rang and left message for dr, she said she had chased them again, but it sure appears as if no one wants to own up to crippling me. I will make an appointment to see my dr and tell her I intend to make a complaint with PALS - thats the section of the hospital that deals with complaints, this has gone on since February and thats way too long. The dr asked me to give her until end of Augst, well thats been and gone now and I have been more than patient.

Hubby started on meds per day then has the lst radium treatment on the 23rd to see if they can shrink the tumours, waste of time as they always come back somewhere else, I should know my family have all had cancer of one sort or another and it has always come back and killed them off after 5 years or so.
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#4
wow Maxina you are really in the wars at the moment and it is shameful how everyone is avoiding helping you.

Please keep us updated on you and your husbands preogress


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#5
Maxima- I know you are discouraged and overwhelmed. God is good. Please do not feel that things are hopeless.
Pia Allen - Edmond, Oklahoma
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#6
Only some times do I feel helpless Pia, I get fed up as my brain still works too fast for my body to process what's going on, ( so says hubby ). I just wish they would admit they mucked up and put something in me that I should not have been put in my groin, but no they all deny ( by not replying to dr or me ) that this was ever done, but I would recognise both the nurse, who hadn't got a clue what she was going and the little dr, who must have been all of 4.11" just. Nor food enough really. x
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#7
(10-02-2019, 01:28 AM)threads Wrote: Only some times do I feel helpless Pia, I get fed up as my brain still works too fast for my body to process what's going on, ( so says hubby ).   I just wish they would admit they mucked up and put something in me that I should not have been put in my groin, but no they all deny ( by not replying to dr or me ) that this was ever done, but I would recognise both the nurse, who hadn't got a clue what she was going and the little dr, who must have been all of 4.11" just.  Nor food enough really. x

HUGS to you!
Pia Allen - Edmond, Oklahoma
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#8
thanks for your hugs Andama and Pia.   You are right Pia, hubby had tablets for 4 weeks with an injection in between, then last Friday he had a triple dose injection its to reduce the testosterone, he had a couple of hot flushes since, lol, had to laugh such a fuss and then he saw the funny side of it as I have had them since I was in my early 50's and still have them mainly between 2 and 4pm and 8 to 10.30 pm, go to bed really soaked lol.   He will have a PSA test in three months time to see if the cancers have shrunk, then its either radium or chemo, or could be both.

On a brighter note I am seeing another Specialist on 3lst will take a copy of the MRI scan I paid for on my back and my knees, he will have proof of where the pain is, and not where the other think it is, one even sort of suggested in a nice way that my mind was at fault, I feel like sending her a copy and saying are these in my mind.

I have actually done a bit of crochet, 3 pairs of frilly booties, just ribbon to put in and then they can be off to the customer.   Also made a start on a crocheted dress for a customer, which is long overdue.
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#9
I am glad your are finding the bright side of things!
Pia Allen - Edmond, Oklahoma
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#10
Sorry to hear you are struggling Maxina .. hope things have and continue to improved for you
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